Knowledge Users

Canadian COVID-19 Emergency Department Registry

CCEDRRN encourages external scientists to be in touch in order to maximize the scientific value of the epidemiologic COVID-19 related data collected since 2020. The network endorses the guidance put forth by the World Health Organization to enable data sharing to optimize learning.


We will prioritize data requests by network Members, but other scientists from non-Member institutions are also welcome to request data access.

Scientists and researchers who wish to access our data for use in their projects may request access from the CCEDRRN Executive Committee, and the Protocol Review and Publications Committee by contacting admin.ccedrrn@ubc.ca.

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Data Collection Tools

Available for Download

Data Dictionary

The CCEDRRN registry data dictionary.

Retrospective Data Collection Form

Research assistants will review the patients’ records and abstract data about demographics, history, risk factors, co-morbid conditions, medication use, physical examination findings, treatment, procedures, and outcomes from the pre-hospital, ED and in-hospital record.

Prospective Data Collection Form

In sites where prospective data collection is possible, unit clerks and/or healthcare providers will identify eligible patients after they have been triaged, and will flag the charts of enrolled patients electronically or by inserting a brightly coloured data collection sheet in the chart which will remain outside of the patient’s room at all times.

Patient Telephone Follow-up

Follow-up telephone calls at 60 days will confirm patients’ consent to participate further in follow-up at 6 and 12 months, and linkage to administrative data.
At follow-up, we will ascertain quality of life using the VR12 instrument, the WHO ordinal scale, gender-based variable, vaccine status, race, ethnicity, and other social factors. 
Patient partners are currently developing a questionnaire about patient experiences in self-isolation/quarantine.

REDCap

REDCap is a secure web application for building and managing online surveys and databases. While REDCap can be used to collect virtually any type of data (including 21 CFR Part 11, FISMA, and HIPAA-compliant environments), it is specifically geared to support online or offline data capture for research studies and operations. The REDCap Consortium, a vast support network of collaborators, is composed of thousands of active institutional partners in over one hundred countries who utilize and support REDCap in various ways.

Post-Acute Sequelae of COVID-19

Survey

An additional follow-up survey questionnaire will be conducted at 6 months and 12 months to describe the prevalence and natural course of post-COVID-19 syndrome after infection with SARS-CoV-2.  We will ascertain the impact of vaccination on the risk of developing persistent post-acute sequelae.